T.S. Park, M.D. - Brachial Plexus Palsy Center - St. Louis Children's Hospital, St. Lousi, Missouri - 1-800-416-9956 - http://brachialplexus.wustl.edu.
United Brachial Plexus Network 1307 Coral Reef Lane, Wylie,TX 75098 Phone - 972-429-1931, Fax - 972-429-1932 - a Non-profit organization to inform,support and unite families and those concerned with brachial plexus injuries worldwide.
Brachial Plexus Erb's Palsy Association, Inc. is a newly formed organization with the goals of raising money to sponsor brachial plexus research and help individual children pay for medical expenses. The group is also interested in helping parents and professionals access information related to this injury. 2701 Napolean Ave, New Orleans, LA 70115. Phone: 504/391-0851;
Children's Mercy Hospital
2401 Gillham, Kansas City, Missouri 64108.
Dr. Robert Rinaldi - 816-234-3970
Lucile Packard's Children's Hospital at Stanford University Brachial Plexus Clinic
, a multi-disciplinary clinic of pediatricians, neurologists, surgeons and therapists
exist to evaluate and treat children who have brachial plexus injuries.
Further information or appointments for consultation may be obtained by contacting Ms. Paula Louie-Leong, 900
Welch Road, Suite 15, Palo Alto, CA 94304 or by telephone 1-415-723-3731. fax number, 1-415-723-6786; E-mail
VRHENTZ@Leland.STanford.edu.
The National Organization for Rare Disorders (NORD), is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases. (Erb's Palsy is considered a rare disorder.) NORD's Rare Disease Database lists over 1,000 rare disorder entries. Disorder-specific literature is available for ordering, and NORD has a networking program to help put families with the same diagnosis in touch with each other. P.O. Box 8923, New Fairfield, CT 06812-8923. Phone: 203/746-6518.
National Patient Air Transport Hotline (NPATH) is maintained by Mercy Medical Airlift to insure equal access to distant specialized medical treatment. It is the nation’s only "single source" of information on the full spectrum of long-distance patient air transport. 800/ 286-1217.